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Table 1 OT1 DeSScipher items and their data completeness

From: Classification, categorization and essential items for digital ulcer evaluation in systemic sclerosis: a DeSScipher/European Scleroderma Trials and Research group (EUSTAR) survey

OT1 DeSScipher item

Overall data completeness (%)

Pitting scars fingertips

87.3

Digital ulcers

93.4

DU distal to the PIP

95.2

DU distal to the PIP: within last 24 weeks

34.6

DU distal to the PIP: intravenous Iloprost in last 3 months or present

44.7

DU distal to the PIP: recurrent

95.1

Upper limbs: total number of DU distal to the PIP

83.1

Upper limbs: history of DU distal to the PIP

91.3

Upper limbs: presence of infection of DU distal to the PIP

96.6

Upperlimbs: gangrene

88.2

Upperlimbs: previous amputation

88.7

Upper limbs/localisation of DU PIP: fingertip

58.5

Upper limbs/localisation of DU PIP: on bony prominence

31.8

Upper limbs/localisation of DU PIP: unknown

14.0

Upper limbs: number of DU defined as loss of tissue

65.4

Upper limbs: number of DU due to calcinosis

66.0

Upper limbs: number of DU due to digital pitting scars

60.7

Upper limbs: number DU with unknown origin

55.3

Upper limbs: number of new DU

83.1

Upper limbs: number of DU healed

76.7

Lower limbs: total number of DU

84.7

Lower limbs: history of DU

86.2

Lower limbs: presence infection of DU

80.2

Lower limbs: gangrene

87.8

Lower limbs: previous amputation

88.2

Lower limbs/localisation of DU: patella

1.0

Lower limbs/localisation of DU: malleoli

20.8

Lower limbs/localisation of DU: calcaneus

8.3

Lower limbs/localisation of DU: toes

45.9

Lower limbs/localisation of DU: any other part of leg

14.6

Lower limbs/localisation of DU: unknown

6.2

Lower limbs: number of new DU

83.8

Lower limbs: number of DU healed

82.0

Lower limbs: peripheral arterial disease

86.8

Subcutaneous calcinosis hands

92.4

  1. Data completeness of DeSScipher items on upper limb DU distal to PIP are in italic letters
  2. DU digital ulcers, PIP proximal interphalangeal joints