|
Current age, years, mean (range)
|
48.6 ± 13.5
|
|
Age at diagnosis, years, mean (range)
|
34.5 ± 8.7
|
|
Years since diagnosis, mean ± SD
|
14.1 ± 8.1
|
|
Educational attainment, n (%)
|
|
Less than high school
|
2 (8.3)
|
|
High school/some college
|
10 (41.7)
|
|
Completed college
|
12 (50.0)
|
|
Depressed, n (%)
|
|
No (PROMIS Depression T-score < 56)
|
13 (54.2)
|
|
Yes (PROMIS Depression T-score > 56)
|
11 (45.8)
|
|
Severity of disease activity score (SLAQ), n (%)
|
|
Mild disease activity (score 0–10)
|
6 (25.0)
|
|
Moderate disease activity (score 11–16)
|
7 (29.2)
|
|
Severe disease activity (score ≥ 17)
|
11 (45.8)
|
|
Severity of organ damage score (SA-BILD), n (%)
|
|
No organ damage (score 0)
|
8 (33.3)
|
|
Mild organ damage (score 1–2)
|
8 (33.3)
|
|
Moderate to severe organ damage (score ≥ 3)
|
8 (33.3)
|
|
Current household income, n (%)
|
|
Less than $20,000
|
11 (45.8)
|
|
$20, 000–$49,000
|
9 (37.5)
|
|
$50,000+
|
3 (16.7)
|
|
Refuse to answer
|
1 (4.2)
|
|
Employment, n (%)
|
|
Working full-time or part-time
|
22 (91.7)
|
|
Unemployed/retired/student/homemaker/disabled
|
2 (8.3)
|
|
Insurance statusa, n (%)
|
|
No insurance or underinsured
|
11 (45.8)
|
|
Insured
|
13 (54.2)
|
|
Below 100% povertya, n (%)
|
|
No
|
14 (58.3)
|
|
Yes
|
10 (41.7)
|
|
Number of CDSMP sessions attendedb, n (%)
|
|
1–3 sessions
|
9 (37.5)
|
|
4–6 sessions
|
14 (58.3)
|
|
Currently in a relationship, n (%)
| |
|
Yes
|
15 (62.5)
|
|
No
|
9 (37.5)
|
|
Number of children in household, n (%)
|
|
0 children
|
13 (54.2)
|
|
1–2 children
|
8 (33.5)
|
|
3–4 children
|
2 (8.3)
|
|
5–6 children
|
1 (4.2)
|
