EGR2 | RePreg | RevNatus | Rhekiss | |
---|---|---|---|---|
General information | ||||
Country | France (FR) | Switzerland (CH) | Norway (NO) | Germany (DE) |
Founding year | 2014 | 2017 | 2006 | 2015 |
Data reported by | Physician (rheumatologist, internist, others1), study nurse2, patient2,3 | Rheumatologist, study nurse, patient | Rheumatologist, study nurse, patient | Rheumatologist, study nurse, patient |
Way of data reporting | Web-based (paper-based2) | Web-based | Web-based (paper-based until 2016) | Web-based, app for smartphones and tablets (only for patients) |
Time of enrolment and frequency of visits | ||||
Child wish/pre-conception | ||||
Enrolment possible | Yes | Yes | Yes | Yes |
Maximum number of visits | 8 | 1 | 1 | 5 |
Maximum observation time | 96 months | 6 months | 12 months | 24 months |
Frequency of data collection | Every 12 months | – | – | Every 6 months |
Pregnancy | ||||
Enrolment possible (up to WG) | Yes (124) | Yes (complete pregnancy) | Yes (complete pregnancy) | Yes (20) |
Maximum number of visits | Unlimited | 3 | 3 | 3 |
Maximum observation time | Complete pregnancy | Complete pregnancy | Complete pregnancy | Complete pregnancy |
Frequency of data collection | At least once every trimester | Once every trimester | Once every trimester | Once every trimester |
Postpartum | ||||
Enrolment possible | No | Yes5 | No | No |
Maximum number of visits | 2 | 5 | 3 | 4 |
Maximum observation time | 12 months | 48 months | 12 months | 24 months |
Frequency of data collection | Month 6, 12 pp | Month 2, 6, 12, 24, 48 pp | Week 6, month 6, 12 pp | Month 6, 12, 18, 24 pp |