Table 2 Results of modified Delphi panel (round 3)
KPI | Median (range) of 10 panel participants | ||
|---|---|---|---|
Importance | Feasibility | Priority | |
Indicator 1: Assessment of arthritis-related pain | 8 (6–9) | 8 (6–9) | 8 (8–9) |
Indicator 2: Rheumatological joint count | 9 (7–9) | 8 (7–9) | 9 (8–9) |
Indicator 3: Physician’s global assessment of disease activity | 8 (6–9) | 7.5 (6–8) | 8 (7–9) |
Indicator 4: Assessment of functional ability | 7 (5–9) | 7 (3–8) | 7 (6–9) |
Indicator 5: Assessment of functional ability using the CHAQ | 7 (3–9) | 5.5 (2–8) | 7 (4–9) |
Indicator 6: Composite disease activity measurement | 8 (6–9) | 7 (5–8) | 8 (6–9) |
Indicator 7: Tuberculosis screening | 8 (5–9) | 8 (7–9) | 8 (5–9) |
Indicator 8: Laboratory monitoring for DMARDs | 8 (6–9) | 8 (7–9) | 8 (7–9) |
Indicator 9: Waiting times for rheumatologist consultation for patients with new onset JIA | 8 (6–9) | 7 (4–8) | 8 (5–9) |
Indicator 10: Percentage of patients with JIA seen by a rheumatologist | 7.5 (6–9) | 7 (1–9) | 7 (4–9) |
Indicator 11: Percentage of patients seen in yearly follow-up by a pediatric rheumatologist | 7 (4–8) | 8 (5–9) | 7 (5–8) |
Indicator 12: Median time from the patient’s first clinic visit to the date of their first uveitis screening | 8 (6–9) | 6 (2–9) | 8 (3–9) |
Indicator 13: Assessment of health-related quality of life | 7 (4–8) | 6 (2–8) | 7 (5–8) |
Indicator 14: Assessment of patients/parent satisfaction with care | 7 (3–8) | 5 (2–7) | 7 (3–7) |