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Table 2 Disease risk perception and ethical aspects regarding cohort participation based on visual analog scale

From: Patients’ and rheumatologists’ perceptions on preventive intervention in rheumatoid arthritis and axial spondyloarthritis

 

RA-risk cohort

SpA-risk cohort

Q8 The thought of developing RA/SpA preoccupies me

4 (2–6)

3 (1–5)

Q9 I am certain that I will develop RA/SpA

3 (1–5)

3 (1–5)

Q10 RA/SpA is a severe disease

6.5 (5–8)

6 (4–8)

Q11 I am worried that I have an increased risk of developing RA/SpA

5 (2–6)

3 (1–5)

Q12 By participating in this research, I feel that I am extra confronted with the fact that I have an increased risk to develop RA/SpA

2 (1–5)

1.5 (1–4)

Q13 How objectionable is it for you to be extra confronted with the risk to develop RA/SpA by participation in this cohort?

1 (0–2)

1 (0–1)

Q14 By participating in this research there is more attention for my complaints

6 (2–8)

4.5 (1–5.25)

Q15 I think that by participating in this study I will receive earlier and better medical care upon RA/SpA development than if I did not participate in this study

7 (5–8)

7.5 (6–9)

  1. Numbers are median (IQR)
  2. VAS visual analog scale from 0 (totally disagree) to 10 (totally agree), RA rheumatoid arthritis, SpA spondyloarthritis