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Table 2 PRO selections made by study participants, baseline, and m1–3 (completers, n = 140)

From: Which patient-reported outcomes do rheumatology patients find important to track digitally? A real-world longitudinal study in ArthritisPower

Symptom Instrument Baseline, completers (N = 140) m1, completers (N = 140) m2, completers (N = 140) m3, completers (N = 140)
Pain
  Completion of ANY Pain Instrument 121 (86.4) 121 (86.4) 120 (85.7) 121 (86.4)
  PROMIS Pain Interference 70 (50.0) 75 (53.6) 76 (54.3) 77 (55.0)
  PROMIS Pain Behavior 53 (37.9) 55 (39.3) 55 (39.3) 56 (40.0)
  PROMIS Pain Intensity 68 (48.6) 73 (52.1) 73 (52.1) 76 (54.3)
Physical function PROMIS Physical Function 93 (66.4) 94 (67.1) 95 (67.9) 96 (68.6)
Mental health
  Completion of ANY Mental Health Instrument 115 (82.1) 116 (82.9) 116 (82.9) 116 (82.9)
  PROMIS Depression 76 (54.3) 76 (54.3) 76 (54.3) 76 (54.3)
  PROMIS Anxiety 47 (33.6) 48 (34.3) 49 (35.0) 50 (35.7)
  PROMIS Applied Cognition Abilities 58 (41.4) 60 (42.9) 60 (42.9) 62 (44.3)
  PROMIS Anger 19 (13.6) 19 (13.6) 19 (13.6) 21 (15.0)
Fatigue PROMIS Fatigue 111 (79.3) 111 (79.3) 113 (80.7) 114 (81.4)
Social health
  Any Completion of ANY Social Health Instrument 92 (65.7) 94 (67.1) 100 (71.4) 101 (72.1)
  PROMIS Social Isolation 44 (31.4) 45 (32.1) 48 (34.3) 51 (36.4)
  PROMIS Social Sat DSA 19 (13.6) 20 (14.3) 22 (15.7) 22 (15.7)
  PROMIS Satisfaction Roles Activities 12 (8.6) 13 (9.3) 14 (10.0) 14 (10.0)
  PROMIS Ability to Participate Social 45 (32.1) 46 (32.9) 49 (35.0) 49 (35.0)
  PROMIS Emotional Support 17 (12.1) 17 (12.1) 18 (12.9) 19 (13.6)
Sexual function PROMIS Sexual Function and Satisfaction 11 (7.9) 11 (7.9) 12 (8.6) 12 (8.6)
Sleep PROMIS Sleep Disturbance 79 (56.4) 80 (57.1) 83 (59.3) 86 (61.4)
Morning joint stiffness Duration Morning Joint Stiffness 75 (53.6) 77 (55.0) 76 (54.3) 76 (54.3)
RA flare+ OMERACT RA Flare Instrument 52 (77.6) 45 (67.2) 38 (56.7) 10 (14.9)
  1. m1 month 1, m2 month 2, m3 month 3, Social Sat DSA Satisfaction with Participation in Discretionary Social Activities
  2. Participants were able to select a minimum of 3 and maximum of 10 assessments
  3. +Only RA participants were able to select this assessment (n = 67 of 140 completers)