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Table 2 PRO selections made by study participants, baseline, and m1–3 (completers, n = 140)

From: Which patient-reported outcomes do rheumatology patients find important to track digitally? A real-world longitudinal study in ArthritisPower

Symptom

Instrument

Baseline, completers (N = 140)

m1, completers (N = 140)

m2, completers (N = 140)

m3, completers (N = 140)

Pain

 

Completion of ANY Pain Instrument

121 (86.4)

121 (86.4)

120 (85.7)

121 (86.4)

 

PROMIS Pain Interference

70 (50.0)

75 (53.6)

76 (54.3)

77 (55.0)

 

PROMIS Pain Behavior

53 (37.9)

55 (39.3)

55 (39.3)

56 (40.0)

 

PROMIS Pain Intensity

68 (48.6)

73 (52.1)

73 (52.1)

76 (54.3)

Physical function

PROMIS Physical Function

93 (66.4)

94 (67.1)

95 (67.9)

96 (68.6)

Mental health

 

Completion of ANY Mental Health Instrument

115 (82.1)

116 (82.9)

116 (82.9)

116 (82.9)

 

PROMIS Depression

76 (54.3)

76 (54.3)

76 (54.3)

76 (54.3)

 

PROMIS Anxiety

47 (33.6)

48 (34.3)

49 (35.0)

50 (35.7)

 

PROMIS Applied Cognition Abilities

58 (41.4)

60 (42.9)

60 (42.9)

62 (44.3)

 

PROMIS Anger

19 (13.6)

19 (13.6)

19 (13.6)

21 (15.0)

Fatigue

PROMIS Fatigue

111 (79.3)

111 (79.3)

113 (80.7)

114 (81.4)

Social health

 

Any Completion of ANY Social Health Instrument

92 (65.7)

94 (67.1)

100 (71.4)

101 (72.1)

 

PROMIS Social Isolation

44 (31.4)

45 (32.1)

48 (34.3)

51 (36.4)

 

PROMIS Social Sat DSA

19 (13.6)

20 (14.3)

22 (15.7)

22 (15.7)

 

PROMIS Satisfaction Roles Activities

12 (8.6)

13 (9.3)

14 (10.0)

14 (10.0)

 

PROMIS Ability to Participate Social

45 (32.1)

46 (32.9)

49 (35.0)

49 (35.0)

 

PROMIS Emotional Support

17 (12.1)

17 (12.1)

18 (12.9)

19 (13.6)

Sexual function

PROMIS Sexual Function and Satisfaction

11 (7.9)

11 (7.9)

12 (8.6)

12 (8.6)

Sleep

PROMIS Sleep Disturbance

79 (56.4)

80 (57.1)

83 (59.3)

86 (61.4)

Morning joint stiffness

Duration Morning Joint Stiffness

75 (53.6)

77 (55.0)

76 (54.3)

76 (54.3)

RA flare+

OMERACT RA Flare Instrument

52 (77.6)

45 (67.2)

38 (56.7)

10 (14.9)

  1. m1 month 1, m2 month 2, m3 month 3, Social Sat DSA Satisfaction with Participation in Discretionary Social Activities
  2. Participants were able to select a minimum of 3 and maximum of 10 assessments
  3. +Only RA participants were able to select this assessment (n = 67 of 140 completers)