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Table 1 Characteristics of studies included in systematic review

From: “Walking into the unknown…” key challenges of pregnancy and early parenting with inflammatory arthritis: a systematic review and thematic synthesis of qualitative studies

Author Year Country Disease Perspective N Age (mean, years) Sex (%F) Data collection and analysis Aim Reproductive topic
Pregnancy Parenting Medications
Lempp et al. [13] 2006 UK RA Patient 26 56 85 Individual semi-structured interviews, qualitative content analysis To explore experiences of living with RA and its impact on patients’ private and public lives.
Backman et al. [14] 2007 Canada RA, AS, JIA, SLE Patient 12 - (24, 53 range) 100 Individual semi-structured interviews, Grounded Theory To describe the impact of IA on parenting and identify strategies used by mothers with IA.
Mitton et al. [15] 2007 UK RA Patient 7 36 (21, 41 range) 100 Individual semi-structured interviews, phenomenological analysis To explore the health and life experiences of mothers with RA.
Östlie et al. [16] 2009 Norway JIA Patient 15 30 (22, 38 range) 60 Individual semi-structured interviews, qualitative content analysis To understand living with JIA in childhood, adolescence, and adult life.
McElhone et al. [17] 2010 UK SLE Patient 30 49 (21, 75 range) 100 Individual semi-structured interviews, phenomenological analysis To explore how SLE has impacted patients’ lives.
Eyckmans et al. [18] 2011 Belgium JIA Patient 11 24 (20, 30 range) 73 Individual semi-structured interviews, Grounded Theory To examine growing up with JIA.
Kristiansen et al. [19] 2012 Denmark RA Patient 32 58 (31, 81 range) 59 Focus group interviews, qualitative content analysis To explore how everyday life is affected by RA.
Meade et al. [20] 2012 Australia RA Patient 14 37 (25, 51 range) 100 Written accounts, thematic analysis To examined female patients’ experiences negotiating their family decisions in the context of RA.
Feldthusen et al. [21] 2013 Sweden RA Patient 25 46 (20, 60 range) 76 Focus group interviews, qualitative content analysis To describe how individuals with RA of working age experience and handle their fatigue.
Ackerman et al. [4] 2015 Australia RA Patient 27 32 (31, 36 range) 100 Individual and focus group interviews, inductive analysis To determine the need and preferred modes of delivering information regarding pregnancy, post-natal care, and early parenting among female patients with RA.
Nota et al. [22] 2015 Netherlands IA (RA, AS, PsA) Patient 32 54 (25, 82 range) 81 Individual semi-structured interviews, thematic analysis To explore patients’ considerations when deciding whether to use DMARDs and their information needs for participating in the decision-making process.
Ammerlaan et al. [23] 2017 Netherlands RA, SpA, OA, FM, PsA, othera Patients 35 42 (26, 74 range) 94 Online asynchronous focus group interview, content analysis To investigate preferences and needs for the structure and content of a person-centred online self-management support intervention for patients with ARDs.
Feddersen et al. [24] 2018 Denmark RA Patient 20   100 Individual interview and participant observation, Grounded Theory To explore how female patients with RA manage their disease, motherhood, and work life.
Phillips et al. [5] 2018 UK SLE, RA, JIA, PsA, other Patient
Providerb
22
7
34 (29, 39 range)
NR
100 Individual narrative interviews, thematic analysis To identify the information and support needs of women with ARDs during pregnancy planning, pregnancy, and early parenting.
Birru et al. [25] 2019 USA n/a Provider 12 NR 58 Individual semi-structured interview, thematic analysis To assess rheumatologists’ perspectives, attitudes, and practices regarding pregnancy counseling and reproductive health care.
Clowse et al. [26] 2019 USA SLE Patient
Provider
15
32
(21, 25 range)
44 (28, 67 range)
100
63
Focus group interviews, qualitative analysis To identify factors influencing the management of SLE during pregnancy among community and university rheumatologists.
Gomez et al. [27] 2019 USA SLE, otherc Patient 12d 21.5 (1.7 SD) 83 Individual semi-structured interviews, thematic analysis To explore perspectives of family planning among young people who believe they are infertile or will have challenges carrying a pregnancy to term due to medical conditions or procedures.
Phuti et al. [28] 2019 South Africa SLE Patient 25 31 (22, 45 range) 100 Individual interview, thematic analysis To explore living experiences, perceptions, and unmet needs of South African patients with SLE.
Chew et al. [29] 2019 NR RA Patient 59e NR 100 Written accounts, thematic analysis To explore the information needs and concerns of female patients with RA related to pregnancy and parenting.
Phutif et al. [30] 2020 South Africa SLE Patient 25 31 (22, 45 range) 100 Individual interview, thematic analysis To explore the perceptions and experiences of female patients with SLE related to fertility and pregnancy.
  1. ”, not examined; “”, partially examined; “” examined; n/a, not applicable; NR, not reported
  2. aIncludes systemic sclerosis and palindromic rheumatism
  3. bConsistent of 2 consultant rheumatologists, 1 general practitioner, 1 nephrologist, 2 midwives, and 1 health visitor
  4. cIncludes ovarian cysts, polycystic ovary syndrome, endometriosis, low sperm count, intensive radiology treatment, complications from previous intrauterine device, and thyroid cancer
  5. dIncludes one female participant with lupus
  6. eN is reported as the total number of online written accounted analysed in the article
  7. fUses same sample as Phuti et al. [28]