Table 1 Characteristics of studies included in systematic review
Author | Year | Country | Disease | Perspective | N | Age (mean, years) | Sex (%F) | Data collection and analysis | Aim | Reproductive topic | ||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
Pregnancy | Parenting | Medications | ||||||||||
Lempp et al. [13] | 2006 | UK | RA | Patient | 26 | 56 | 85 | Individual semi-structured interviews, qualitative content analysis | To explore experiences of living with RA and its impact on patients’ private and public lives. | ● | ◐ | ● |
Backman et al. [14] | 2007 | Canada | RA, AS, JIA, SLE | Patient | 12 | - (24, 53 range) | 100 | Individual semi-structured interviews, Grounded Theory | To describe the impact of IA on parenting and identify strategies used by mothers with IA. | ○ | ● | ○ |
Mitton et al. [15] | 2007 | UK | RA | Patient | 7 | 36 (21, 41 range) | 100 | Individual semi-structured interviews, phenomenological analysis | To explore the health and life experiences of mothers with RA. | ● | ● | ○ |
Östlie et al. [16] | 2009 | Norway | JIA | Patient | 15 | 30 (22, 38 range) | 60 | Individual semi-structured interviews, qualitative content analysis | To understand living with JIA in childhood, adolescence, and adult life. | ◐ | ◐ | ○ |
McElhone et al. [17] | 2010 | UK | SLE | Patient | 30 | 49 (21, 75 range) | 100 | Individual semi-structured interviews, phenomenological analysis | To explore how SLE has impacted patients’ lives. | ○ | ● | ○ |
Eyckmans et al. [18] | 2011 | Belgium | JIA | Patient | 11 | 24 (20, 30 range) | 73 | Individual semi-structured interviews, Grounded Theory | To examine growing up with JIA. | ● | ○ | ○ |
Kristiansen et al. [19] | 2012 | Denmark | RA | Patient | 32 | 58 (31, 81 range) | 59 | Focus group interviews, qualitative content analysis | To explore how everyday life is affected by RA. | ○ | ● | ○ |
Meade et al. [20] | 2012 | Australia | RA | Patient | 14 | 37 (25, 51 range) | 100 | Written accounts, thematic analysis | To examined female patients’ experiences negotiating their family decisions in the context of RA. | ● | ● | ◐ |
Feldthusen et al. [21] | 2013 | Sweden | RA | Patient | 25 | 46 (20, 60 range) | 76 | Focus group interviews, qualitative content analysis | To describe how individuals with RA of working age experience and handle their fatigue. | ○ | ● | ○ |
Ackerman et al. [4] | 2015 | Australia | RA | Patient | 27 | 32 (31, 36 range) | 100 | Individual and focus group interviews, inductive analysis | To determine the need and preferred modes of delivering information regarding pregnancy, post-natal care, and early parenting among female patients with RA. | ● | ● | ● |
Nota et al. [22] | 2015 | Netherlands | IA (RA, AS, PsA) | Patient | 32 | 54 (25, 82 range) | 81 | Individual semi-structured interviews, thematic analysis | To explore patients’ considerations when deciding whether to use DMARDs and their information needs for participating in the decision-making process. | ◐ | ○ | ● |
Ammerlaan et al. [23] | 2017 | Netherlands | RA, SpA, OA, FM, PsA, othera | Patients | 35 | 42 (26, 74 range) | 94 | Online asynchronous focus group interview, content analysis | To investigate preferences and needs for the structure and content of a person-centred online self-management support intervention for patients with ARDs. | ◐ | ● | ○ |
Feddersen et al. [24] | 2018 | Denmark | RA | Patient | 20 | 100 | Individual interview and participant observation, Grounded Theory | To explore how female patients with RA manage their disease, motherhood, and work life. | ○ | ● | ○ | |
Phillips et al. [5] | 2018 | UK | SLE, RA, JIA, PsA, other | Patient Providerb | 22 7 | 34 (29, 39 range) NR | 100 | Individual narrative interviews, thematic analysis | To identify the information and support needs of women with ARDs during pregnancy planning, pregnancy, and early parenting. | ● | ● | ● |
Birru et al. [25] | 2019 | USA | n/a | Provider | 12 | NR | 58 | Individual semi-structured interview, thematic analysis | To assess rheumatologists’ perspectives, attitudes, and practices regarding pregnancy counseling and reproductive health care. | ● | ○ | ● |
Clowse et al. [26] | 2019 | USA | SLE | Patient Provider | 15 32 | (21, 25 range) 44 (28, 67 range) | 100 63 | Focus group interviews, qualitative analysis | To identify factors influencing the management of SLE during pregnancy among community and university rheumatologists. | ● | ○ | ● |
Gomez et al. [27] | 2019 | USA | SLE, otherc | Patient | 12d | 21.5 (1.7 SD) | 83 | Individual semi-structured interviews, thematic analysis | To explore perspectives of family planning among young people who believe they are infertile or will have challenges carrying a pregnancy to term due to medical conditions or procedures. | ● | ○ | ○ |
Phuti et al. [28] | 2019 | South Africa | SLE | Patient | 25 | 31 (22, 45 range) | 100 | Individual interview, thematic analysis | To explore living experiences, perceptions, and unmet needs of South African patients with SLE. | ● | ◐ | ○ |
Chew et al. [29] | 2019 | NR | RA | Patient | 59e | NR | 100 | Written accounts, thematic analysis | To explore the information needs and concerns of female patients with RA related to pregnancy and parenting. | ● | ● | ● |
Phutif et al. [30] | 2020 | South Africa | SLE | Patient | 25 | 31 (22, 45 range) | 100 | Individual interview, thematic analysis | To explore the perceptions and experiences of female patients with SLE related to fertility and pregnancy. | ● | ● | ◐ |