Quotes | Votes, number | |
---|---|---|
African American men (n = 5) | ||
Impact of flare on social life | ‘Affects my social life - Going to dinner, church, movies, etcʼ | 10 |
‘I don’t want to be around anybody during the attackʼ | ||
Pain during and after the flare and its impact | ‘…(flare causes)…extreme painʼ | 9 |
‘Crying while I am in painʼ | ||
‘It makes me emotional and mean when I have an attackʼ | ||
Limitation of recreational activities | ‘Things that I like are taken away (music)ʼ | 6 |
‘I can’t go (places…) with my brothersʼ | ||
‘Affects my hobbies - fishing, hunting, biking, playing music, riding motorcycle, runningʼ | ||
Work productivity | ‘Hopefully your boss understandsʼ | 6 |
‘Relationships are hard at work tooʼ | ||
‘Caused me to take off from (or ability to do) my job.ʼ | ||
Unpredictability of flare that brings a normal day to a halt | ‘Brings normal day to a haltʼ | 5 |
‘Stopping the desire to do anythingʼ | ||
‘Comes unexpectedʼ | ||
‘Don’t even want someone breathing around meʼ | ||
Dietary restrictions and modification | ‘What do different foods contribute to gout?ʼ | 5 |
‘Staying away from fish, shellfish, steaks, & peasʼ | ||
‘Affects foods I can enjoyʼ | ||
‘Always have to watch what I eat - staying disciplinedʼ | ||
Feeling of loss of youth | ‘I was diagnosed in my 20s… feel old… | 5 |
‘Causes me to feel “old” before my timeʼ | ||
African American men (n = 9) | ||
Severe pain and disability during an attack | ‘When I have an attack it shuts down my whole life. I can't function. I will stay in the bed three to four days while I wait for it to passʼ | 36 |
‘Have to have wheel chair close to me during an attackʼ | ||
‘I have to keep my crutches by the bed so that I can get to the bathroomʼ | ||
‘You will do anything to get reliefʼ | ||
‘I miss going to church and other functionsʼ | ||
Swelling and tenderness in acute flare | ‘My toe ankle and knee they really swell up.ʼ | 16 |
‘…tenderness in the acute phaseʼ | ||
Affects sleep | ‘Limits my ability to have a good night sleepʼ | 16 |
‘You just can't sleepʼ | ||
Dietary restrictions and modification | ‘Affects what I can eatʼ | 14 |
‘Can’t have a few drinks without a flareʼ | ||
‘Can't eat red meat, even though I love itʼ | ||
Need for daily medication | ‘…have got to take medication every dayʼ | 11 |
‘I have to take additional medications to stay wellʼ | ||
‘It’s inconvenientʼ | ||
‘It’s just another drug when you add that to our other medicationsʼ | ||
‘I also have to take a pain medicationʼ | ||
At-home productivity and dependency on family members and others | ‘It disables me. I need help with my socks or just walking around the houseʼ | 9 |
‘I can't use lawn mowerʼ | ||
‘Need help from family and othersʼ | ||
‘During a flare up I need help just to get me to the doctorʼ | ||
‘One time the fire department had to find a way to get me out of the bed, into a wheelchair, into the back of a truck then to the hospital… It took a whole lot of help to get to the doctor that dayʼ | ||
‘I can't do anything someone will have to bring me food, help me in and out of the bed; hop to the bathroom during an attackʼ | ||
Affect on family life and sexual function | ‘I can’t go to my grandson’s gameʼ | 9 |
‘I can't do the things I like to do with my wifeʼ | ||
‘My relationships are affected… I don't want anyone around me to touch meʼ | ||
African-American men (n = 9) | ||
Dietary restrictions and modification | ‘Made me change my dietʼ | 24 |
‘I had to change the food that I ateʼ | ||
‘I can’t eat seasoned food; I did not like that at allʼ | ||
‘No seafood, shell fish, red meat and fried foodsʼ | ||
‘Watch what you drink - no alcoholʼ | ||
‘Can’t have sodas or drink orange juiceʼ | ||
‘Can’t have peanuts, pecans and tomatoesʼ | ||
Problem with daily activities | ‘Hard to move aroundʼ | 18 |
‘Very hard to move around during a flare. It stays with me for a while, several daysʼ | ||
‘Could not stand and it would hurt if the cover was touching itʼ | ||
‘Have to be careful what you can doʼ | ||
‘No activity outsideʼ | ||
‘It's aggravating, not being able to do anythingʼ | ||
‘All you want is the pain to go awayʼ | ||
‘Gout affects my drivingʼ | ||
‘During the flare there is a problem going to the restroomʼ | ||
‘I couldn't drive my truck if my gout was flaring. I had to learn to shift with my left foot. My diet, activities and everything had to change because I could not do it like I used toʼ | ||
Sexual difficulties | ‘Problem with having sex during the flare. When you are in pain… the love goesʼ | 14 |
‘You don't want to do anything when you are in pain. Our old lady doesn't understandʼ | ||
Problem with shoes/footwear | ‘I wore a wider shoeʼ | 14 |
‘I had to get shoes 2 sizes largerʼ | ||
‘Needed hard leather shoes and loose fitting shoesʼ | ||
‘Get out of the fancy shoes and wear some soft shoesʼ | ||
‘I wear sandalsʼ | ||
Joint swelling | ‘Affects my joints - I have swellingʼ | 12 |
‘I will have small swelling in my feetʼ | ||
Life-changing impact | ‘Made my life change in a lot of waysʼ | 9 |
‘My whole life changed. I had to accept a lot of things that I did not want toʼ | ||
‘Pain made me change in a lot of ways with my friends family and the people that I am normally around. It will have an impact on the way your carry yourselfʼ | ||
Severe pain during flare | ‘Can’t have anything touching it a sheet, clothes… nothing.ʼ | 9 |
‘…when it flares up you can't sleepʼ | ||
‘I have to sleep a certain way to avoid painʼ | ||
‘I have to sleep in a chairʼ | ||
Emotional impact | ‘Can’t play with painʼ | 7 |
‘Makes me irritatedʼ | ||
Caucasian men (n = 5) | ||
Problem with daily activities and at-home productivity | ‘Gout affects my physical abilitiesʼ | 17 |
‘I can't garden or do yard work anymore. Can't do vegetable gardeningʼ | ||
‘Work around the house is impossible when I have a harsh gout attackʼ | ||
‘…(during flare)… My sink is full of dishesʼ | ||
‘Standing is a devil (during flare).ʼ | ||
‘My inability to walk and move around totally limits my life (to go to the bathroom, eat do anything)ʼ | ||
Impact on family life and sexual function | ‘Affects your sex lifeʼ | 10 |
‘My life with family has sufferedʼ | ||
Work productivity | ‘My work output suffersʼ | 8 |
‘I get paid on commission. My average has dropped over the years due to goutʼ | ||
‘Affects my job. A limitation to the jobʼ | ||
‘The medication (narcotics) has made it difficult to workʼ | ||
Long-term medication side-effects | ‘Affects your personality usually due to the medication that you are taking (steroids)ʼ | 7 |
‘I worry about the long term affects the drugs have on my healthʼ | ||
‘The side affects that I have or could get from the medication or the diseaseʼ | ||
‘My joints are deteriorated due to me continuing to move during a flare upʼ | ||
‘Because I have one kidney my pain reliving drugs are even more limited“ | ||
Impact on comorbidity management | ‘How it (gout) interacts with my other health issuesʼ | 6 |
‘Raises blood pressureʼ | ||
‘That's my problem - I do not know how it is affecting my other problems. I ask my doctor all the timeʼ | ||
Dependency on family members | ‘I don't like to be waited on… they should not have to bear that burdenʼ | 5 |
‘I have to have help when I am having a severe attackʼ | ||
‘Concern over being dependent on my wife and family because of my limitationsʼ | ||
Makes traveling very tricky | 5 | |
Caucasian men (n = 7) | ||
Intense pain | ‘Gout leads to severe painʼ | 24 |
‘Attack in the unusual placesʼ | ||
‘Unable to live the active life tat I liveʼ | ||
Gout stops certain activities | ‘Limited movementʼ | 18 |
‘….couldn’t walkʼ | ||
‘Inability to exercise, have family interactionsʼ | ||
‘..(had to) reduce daily activitiesʼ | ||
‘Limitation of mobilityʼ | ||
Not predictable | ‘Don’t you wish you knewʼ | 18 |
‘Can not plan activities in town and out of townʼ | ||
‘Out of town, can not get medical attention quick for an attackʼ | ||
Need for daily medication | ‘Take medication everyday and buy itʼ | 12 |
‘If you travel you are stuck with themʼ | ||
‘…(problem) having to take daily medicationsʼ | ||
Expenses of medications and doctor visits | ‘I have group health insurance and my condition has impact on othersʼ | 8 |
‘Limitation of disposable incomeʼ | ||
‘….emergency room visits are expensiveʼ | ||
Lack of healthiness | ‘….contributes to the sense of lack of healthinessʼ | 6 |
Possible drug interactions | ‘Lot of unexplained symptoms, wondering if they might be due to side effects of allopurinolʼ | 6 |
‘We are getting older and need to worry about theseʼ | ||
‘What about it’s effect on medications for other diseasesʼ | ||
Caucasian men (n = 3) | ||
Severe pain | ‘Pain was so much, I could hardly walkʼ | 11 |
‘I broke my leg an year ago, I swear gout hurt worse than my fractureʼ | ||
‘I broke my ankle, not even comparable to acute gout attack (gout was worse)ʼ | ||
‘Pain from gout was worse than neck fusion symptomsʼ | ||
‘I can feel the pain with every heartbeatʼ | ||
Physical limitation | ‘Limits my ability to play sports, family events and excursions, vacation, home improvement and choresʼ | 12 |
‘Limits sporting events during the attackʼ | ||
‘Could hike, if it weren’t thereʼ | ||
‘Has long-term impact on hobbiesʼ | ||
‘I had to give up sports I played my whole lifeʼ | ||
‘Had to so “no” a lotʼ | ||
‘Had an attack during vacation. I couldn’t do things and make me think of polioʼ | ||
Emotional impact | ‘Puts emotional strain in relationships, marriage and familyʼ | 7 |
‘People have heard about it, but don’t know what it isʼ | ||
‘It led to my divorceʼ | ||
My wife said in her journal “… seems that he wants to be in pain to avoid doing things with meʼ | ||
‘My family and wife know very well what gout isʼ | ||
Limits work ability | ‘Limits my ability to workʼ | 6 |
‘Delay, reschedule or ask coworkers (ask for help)ʼ | ||
‘Traveling is difficultʼ | ||
‘Can’t driveʼ | ||
‘….had to get cherry juice and spend a night in a hotelʼ | ||
Need to take daily medication | ‘Have to take medication dailyʼ | 4 |
‘Not easy to fill and refill, especially when travelingʼ | ||
‘I don’t like taking medications every dayʼ | ||
‘Allopurinol if a miracle drugʼ | ||
Awareness of joint disease | ‘Constantly cautious of joint sensitivityʼ | 4 |
‘Anytime I feel something it constantly reminds me of my attacksʼ | ||
Finding fellow people with gout | ‘Bond with people who know how it feelsʼ | 1 |
‘Becoming part of social interactionʼ | ||
‘Every friend of mine knows I have goutʼ |