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Table 1 Demographic data and proxy-reported health-related quality of life outcomes of patients and healthy peers at baseline

From: The majority of patients with newly diagnosed juvenile idiopathic arthritis achieve a health-related quality of life that is similar to that of healthy peers: results of the German multicenter inception cohort (ICON)

  Patients (n = 953) Peer group (n = 491) Weighted patients (n = 953) Weighted peers (n = 491)
Female, n (%) 640 (67.2%)* 290 (59.1%) 613 (64.3%) 311 (64%)
Age at study enrollment (years), mean (SD) 7.9 (4.8)* 8.4 (4.6) 8.1 (4.9) 8.3 (4.5)
Country of origin Germany, n (%) 697 (76.9%)** 413 (84.5%) 726 (79.8%) 390 (80.6%)
Parent’s education score, mean (SD) 4.7 (1.6)** 5.4 (1.5) 5.0 (1.6) 5.0 (1.5)
Equivalence household net income score, mean (SD) 4.0 (1.9)** 4.7 (1.8) 4.2 (1.9) 4.2 (1.9)
SES, mean (SD) 8.7 (3.0)** 10.1 (2.9) 9.2 (3.1) 9.3 (3.0)
 Low (≤ 6.55), n (%) 288 (30.2%) 78 (15.9%) 241 (25.3%) 120 (24.7%)
 Moderate, n (%) 486 (51.0%) 238 (48.5%) 485 (50.8%) 239 (49.3%)
 High (≥ 12.1), n (%) 179 (18.8%) 175 (35.6%) 229 (24.0%) 126 (26.0%)
PedsQL total score, mean (SD) 71.5 (18.4)** 89.9 (7.7) 71.7 (18.2)** 89.6 (7.9)
PedsQL physical health, mean (SD) 66.0 (24.6)** 95.1 (7.1) 66.4 (24.4)** 94.9 (7.2)
PedsQL psychosocial health, mean (SD) 74.8 (17.4)** 87.1 (9.5) 74.9 (17.3)** 86.7 (9.7)
PedsQL emotional functioning, mean (SD) 68.9 (22.1)** 80.4 (13.8) 69.0 (21.9)** 80.1 (14.1)
PedsQL school functioning, mean (SD) 72.9 (20.9)** 88.1 (12.1) 73.1 (20.8)** 87.6 (12.3)
PedsQL social functioning, mean (SD) 82.0 (19.1)** 92.7 (10.0) 82.0 (19.0)** 92.5 (10.0)
SDQ, total scale (range 0–40), mean (SD) 9.4 (5.8)** 5.8 (4.8) 9.2 (5.9)** 6.1 (4.9)
Parent’s global (NRS 0–10), mean (SD) 3.0 (2.3)** 0.7 (1.0) 3.0 (2.3)** 0.7 (1.0)
Pain (NRS 0–10), mean (SD) 3.0 (2.8)** 0.4 (0.8) 2.9 (2.8)** 0.4 (0.9)
  1. *p < 0.05, **p < 0.001
  2. NRS, numeric rating scale; PedsQL, Pediatric Quality of Life Inventory; SD, standard deviation; SDQ, Strength and Difficulties Questionnaire; SES, socioeconomic status