Table 4 Long-term outcome of RP patients
Variables (total points) | Median (IQR, range) / N (%) |
|---|---|
Respiratory symptoms (5-20) | 8 (6.5-11,5-16) |
 Neck/chest pain (4) | 1 (1-1,1-4) |
 Hoarseness (4) | 1 (1-1,1-4) |
 Cough (4) | 2 (1-3,1-4) |
 Dyspnea (4) | 2.5 (1-3,1-4) |
 Frequency (4) | 2 (2-2.8,1-4) |
Dyspnea scale according to mMRC (1-5) | 2 (1-2,1-5) |
 Dyspnea with strenuous exercise (1) | 9 (30%) |
 Dyspnea when hurrying or walking up a slight hill (2) | 14 (46.7%) |
 Walks slower than people of the same age because of dyspnea or has to stop for breath when walking at own pace (3) | 3 (10%) |
 Stops for breath after walking 100 yards (91 m) or after a few minutes (4) | 2 (6.7%) |
 Too dyspneic to leave house or breathless when dressing (5) | 2 (6.7%) |
VAS of airway symptoms (0-10) | 3 (2-5,1-10) |
QoL (3-6) | |
 Good mental health (2) | 24 (80.0%) |
 Good appetite (2) | 27 (90.0%) |
 Well sleep (2) | 25 (83.3%) |
Confidence about the disease (2-4) | |
 Satisfied with current health condition (2) | 21 (70.0%) |
 Have confidence in the future (2) | 26 (86.7%) |
Total points (45) | 18 (15.5-25) |